92 Where can I find information on the Internet about Epilepsy?
Description
This article is from the Epilepsy FAQ, by Andrew Patrick (andrew@calvin.dgbt.doc.ca) with numerous contributions by others.
92 Where can I find information on the Internet about Epilepsy?
o There are two Epilepsy-related mailing lists: "Epilepsy-List" is
intended for general discussions about Epilepsy and seizure
disorders. Most traffic is from people living with Epilepsy or
their friends and family. The companion list, "Epilepsy-PRO" is
intended for discussions about Epilepsy and seizure disorders by
professionals working in this field. To find out about these
lists, send mail to listserv@calvin.dgbt.doc.ca and include the
command lines "info epilepsy-list" and/or "info epilepsy-pro".
o There is an Epilepsy Home Page on the web that has several links,
including one for the Ketogenic Diet. The URL is
http://www.swcp.com/~djf/epilepsy/index.html. The Ketogenic Diet
link shows the URL
http://www.swcp.com/~djf/epilepsy/ketogenic.html.
o Mass General Hospital and Harvard sponsor a neuro forum where
people can ask questions about seizure disorders, meds, etc. The
address is http://dem0nmac.mgh.harvard.edu/neurowebforum and you
may try http://dem0nmac.mgh.harvard.edu/epilepsy/epihome.html.
[Note: that is a "zero" in the hostname: dem0nmac. -- ASP]
o Another source of information is
http://www.webcom.com/pleasant/sarah/epilepsy.html
o The Charles A. Dana foundation, which has opened a website at
http://www.dana.org/, supports brain research and school reform by
means of grants and public education initiatives.
o There's a fairly extensive description of Depakote at
http://www.fairlite.com/ocd/medications/depakote.shtml and this
may be a good reference for information on many medications:
http://www.fairlite.com/ocd/medications.
Another reference for drug information is also available:
http://www.healthadministration.org/resources/glossary-of-drugs/
o Canine Epilepsy:
http://www.zmall.com/pet_talk/dog-faqs/epilepsy.html
o The Epilepsy Society of Northwest Florida has a home page:
http://www.cil.gulf.net/epil.html.
o The Epilepsy Association of Metro Toronto also has a home page:
http://www.interlog.com/~rutheamt.
o Your Child and Neurosurgery contains several chapters on the
surgical treatment of children with medically refractory epilepsy:
http://peds-neuro-web.med.nyu.edu.
o Other sites people have mentioned:
+ Epilepsy Support/Education Organizations:
http://neurosurgery.mgh.harvard.edu/ep-resrc.htm
+ MGH Epilepsy Surgery:
http://neurosurgery.mgh.harvard.edu/epilepsy.htm
+ Assorted Medical Links:
http://soho.ios.com/~lewycky/medical.html
+ SURGERY FOR EPILEPSY:
http://neurosurgery.mgh.harvard.edu/epil-nih.htm
+ http://ccfadm.eeg.ccf.org/~tom/ cv.out
+ AECOM/MMC Epilepsy Home Page:
http://balrog.aecom.yu.edu/epilepsy/
+ Neurosciences Internet Resource Guide:
http://http2.sils.umich.edu/Public/nirg/nirg1.html
+ Department of Neurological Surgery: http://www.neus.ccf.org/
+ MCG-Neurology: http://www.neuro.mcg.edu/
+ University Medical Center:
http://www.ahsc.arizona.edu/umc.shtml
+ Tammi's Epilepsy Page:
http://www.mndly.umn.edu/~chur/epilepsy.html
+ JHMI-InfoNet: Patient Advocacy Groups:
http://infonet.welch.jhu.edu/advocacy.html
+ Neurology/Neuroscience:
http://www.informatik.uni-rostock.de/HUM-MOLGEN/neurology/
+ Yale Section of Neurosurgery:
http://info.med.yale.edu/surgery/neurosur/
+ UNM Neurosurgery Associates:
http://spine.unm.edu/neurosurg/fac&res.html
+ Basic Sciences: http://lnbd.uicomp.uic.edu/homepage/bs.htm
+ PSI PET Program: http://pss023.psi.ch/
+ About the CVRC: http://ceres.med.upenn.edu/www/cvrc.html
+ http://www.med.stanford.edu/touchstone/listserv.html
+ ftp://ftp.win-uk.net/pub/users/copernic/medical.resources
+ http://www.ibmpcug.co.uk/~copernic/meda.htm
+ Neuropsychology Central:
http://www.premier.net/~cogito/neuropsy.html
+ EpiNet: http://www.epinet.org.au/
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