This article is from the Organ Transplant FAQ, by email@example.com (Michael Holloway) with numerous contributions by others.
(See also Part 1, section II for UNOS WWW page.)
From UNOS quick info sheet:
The United Network of Organ Sharing, located in Richmond, Virginia,
administers the National Organ Procurement and Transplantation Network
(OPTN) and the U.S. Scientific Registry for Organ Transplantation
under contracts with the US Department of Health and Human
Services. UNOS is responsible for promoting, facilitating and
scientifically advancing organ procurement and transplantation
throughout the United States while administering a national organ
allocation system based on scientific and medical factors and
UNOS members include every transplant program, organ procurement
organization and tissue typing laboratory in the United States.
Policies governing the transplant community are developed by the
UNOS membership through a series of regional meetings, deliberations
at the national committee level and final approval by a 32 member
board of directors, equally represented by physicians and
UNOS has formulated policies to ensure equitable organ allocation to
patients registered on the national waiting list. These policies
forbid favoritism based upon political influence, race, sex of
financial status; they rely, instead, upon medical and scientific
Back issues of "UNOS Update", the UNOS Ethics Committee whitepaper
reports on alternative organ donation and tables of recent UNOS
statistics on organ transplantation, are available through the Yale
biomedical gopher (see Part 1, section II).
The UNOS 800 number for organ donation information, pamphlets, organ
donor cards, bumper stickers, etc., is: 1-800-24-donor.
To request transplantation statistics, UNOS Update, or ethics
committee reports call (804) 330-8500. UNOS Update gratis
subscription requests can also be made by writing to Esther
Benenson, Managing Editor, UNOS Update, P.O. Box 13770, Richmond, VA
23225-8770. A list of educational material is also available. Some
of these require a fee.
You can also send a request for information or donor education
materials to NewmanJD@gwwpm1.unos.org.
From Joel Newman <NewmanJD@gwwpm1.unos.org> (5/24/96)
UNOS does have center-specific graft and patient survival
rates and can provide up to 10 programs' stats free of charge. For
better tracking and fulfillment, we ask that you send us a written request
(can be faxed or e-mailed). Please specify the programs for whom you
want data and give us a snail-mail address (there is a user's guide that
accompanies the data, and it's almost always too much to fax). The best
number to call for more info is the Communications Department at
804-330-8561. You can also fax requests to us at 804-330-8507, or
e-mail me and I'll pass it on. Please try to allow a week or so for us to
process and mail the info -- we're getting a lot of requests lately.