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7. Any people who have one of the disabilities in question who would like to share their experiences?




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This article is from the Pregnancy Screening FAQ, by Lynn Gazis-Sax (gazissax@netcom.com) with numerous contributions by others.

7. Any people who have one of the disabilities in question who would like to share their experiences?

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Anonymous response 5:

I don't have any experiences with testing but I have spina bifida.
As a person with a disability, I want to point out (without getting
into this long and unpleasant debate) that purely from a social
science perspective, I think you are biasing your survey by using the
term "birth defect". This highly offensive term implies people with
disabilities are defective and reveals a bias (whether intended or
not as I imagine it may not be your position at all) in favour of
aborting fetuses diagnosed as having a disability. A better term
would simply be disability so people could decide for themselves.
And no, I am not some anti-choice bigot and thoroughly 100%
pro-choice on all issues except aborting fetuses with disabilities.
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previous page: 6. Any people who have had children (siblings, etc.) with some of the defects screened for who would like to share their experiences?
  
page up: Pregnancy Screening FAQ
  
next page: 8. Any other personal experiences which would be helpful to people considering prenatal testing for disabilities?