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12.0 Support Groups


This article is from the Children Allergies and Asthma FAQ, by Eileen Kupstas Soo kupstas@cs.unc.edu with numerous contributions by others.

12.0 Support Groups

American Academy of Allergy Asthma & Immunology (AAAAI)
611 East Wells St.
Milwaukie, WI 53202
(414) 272-6071
(800) 822-ASMA (2762)

Professional association of allergists; provides information booklets
and referrals to specialists in your area.

The American Academy of Environmental Physicians (913) 642-6062
Maintains list of physicians who work with chemical sensitivities.

American Allergy Association
PO Box 7273
Menlo Park, CA 94026

An association of people suffering from allergies, as well as
interested physicians and medical personnel. The association
distributes a newsletter, book reviews, professional articles,
and recipes. They have many publications, including _Allergies
in Infants_.

American Celiac Society & Dietary Support Coalition
Annette Bentley
58 Musano Court
West Orange, NJ 07052-4114
201/325-8837 in New Jersey
$25 US, as of this revision

Celiac Disease Foundation ($35/yr, starter info free)
Elaine Monarch
13251 Ventura Blvd. Suite 3
Studio City, CA 91604-1838
818-990-Celiac (818-990-2354)

Celiac Sprue Association/USA ($20/yr - $24 first year for new members)
Leon Rottman
PO Box 31700
Omaha, NE 68131-0700
402/558-0600 in Nebraska.

American College of Allergy and Immunology
800 E. Northwest Highway, Ste. 1080
Palatine, IL. 60067
(708) 359-2800 or 1-800-842-7777

American Lung Assocication of Contra Costa
(510) 935-0472
American Lung Association of Santa Clara
(408) 998-5864

Has pamphlets on lung disease, smoking and offers asthma summer
camps for children

Asthma & Allergy Foundation of America
1125 15th. Street N.W., Ste. 502
Washington, D.C. 20005
(800) 624-0044 or (800) 7-ASTHMA [(800) 727-8462]

Offers referrals to affliated support groups and specialized
medical services througout the country and a newsletter.

Allergy and Asthma Network/Mothers of Asthmatics, Inc
3554 Chain Bridge Road, Ste. 200
Fairfax, VA. 22030
(703) 385-4403
(800) 878-4403

Publishes a monthly newsletter with practical information for
patients and families. Also has books, videos and other educational
material available

Canadian Celiac Association (Diet for Life Handbook $17.95 + $3)
6519B Mississauga Road (member $ vary, use credit card)
Mississauga, Ontario L5N 1A6
905-567-7195 (800-363-7296 in Canada)

E.L.A.S.T.I.C. (Education for Latex Allergy / Support-Team and Information-Coalition)
Information and support for individuals with latex allergies, education,
health information. To subscribe to the Latex Allergy News, and become informed
of current developments in research advancements, survival skills
and ELASTIC proceedings, please contact:
Debra Adkins, Editor
176 Roosevelt Ave.
Torrington CT 06790
(203) 482-6869
FAX: (203) 482-7640
Compuserve 76500,1452

Contacts in many states are being established now, if you have
any interest in participating in any area, please contact:

Elizabeth C. Borel DMD  ELASTIC   or    Nancy A. Mitchell  ELASTIC 
196 Pheasant Run Rd.                    3 Folsom's Pond Rd.
West Chester, PA   19380                Wayland, MA   01778
(610) 436-4801                          (508) 358-5979
Compuserve  102246,126                  nam1@ix.netcom.com 

The Food Allergy Network
10400 Eaton Place, Suite 107
Fairfax, VA 22030-5647
fax 703-691-2713

Non-profit organization that puts out a newsletter ($24.00US)
on food allergies, that covers allergy-related subjects such as
eczema, allergen-free recipes, drug updates, news updates, a dietician's
column. They also sell a number of reasonably priced booklets and cards to
help you cope with schools, information on anaphylaxis (potentially lethal
allergic reactions), how to read food labels so as to avoid allergens
(ex. soy products go by many names in packaging). Sample newsletter and
information sent on request.

Gluten Intolerance Group of North America ($25/yr + $13.45 starter pack)
Elaine Hartsook
PO Box 23053
Seattle, WA 98102

Greater Philadelphia Celiac-Sprue Support Group (extensive starter pack)
Phyllis J. Brogden
6318 Farmar Lane
Flourtown, PA 19031

For information on multiple chemical sensitivities (MCS)

The Human Ecology Action League (HEAL)
PO Box 29629
Atlanta, GA 30359-1126
(404) 248-1898

Marion Merril Dow Pollen Hotline: 1-800-POLLENS

National Jewish Center for Immunology and Respiratory Medicine
(800) 222-5864
Provides information on lung disease through the toll free LUNG LINE
Accepts patients thru physician referral

The National Jewish Center (NJC) is probably the leading
research and treatment center for asthma and other
immunological diseases in the world. In addition to
providing specialized treatment, NJC conducts
pharmaceutical trials, consultations, publishes a
newsletter, and provides many other highly specialized
and helpful services. Two of note include:

The 24-hour National Jewish Lung Line (TM) which is
staffed by specially trained nurses. Call 1-800-222-LUNG.
The 24-hour National Jewish Lung Facts (TM) - pre-recorded
information on respiratory and immunological diseases and
programs at NJC. Call 1-800-552-LUNG


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