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This article is from the Chronic Fatigue Syndrome (CFS) FAQ, by cfs-news@cais.com (Roger Burns) with numerous contributions by others.
There have been many complaints since the name CFS was adopted in 1988
by the U.S. Centers for Disease Control that this name trivializes the
illness and reinforces the perception that it may not be a legitimate
disease. U.S. policy currently is that there is much medical
literature tied to the current name, and that a change of name should
wait at least until an accepted biological marker is found. There is
discussion going on now within the patient community about changing
the name of the illness. For further information about this, see the
web page at http://www.cfs-news.org/name.htm, or send an e-mail
message which says GET CFS NAME to address
LISTSERV@MAELSTROM.STJOHNS.EDU, or see the Winter 1997 CFIDS Chronicle
published by the CFIDS Association of America (see question 5.06
below).
 
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