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Organ Transplant FAQ



Frequently Asked Questions about

This FAQ about Organ Transplant was compiled and written by mike_holloway@hotmail.com (Michael Holloway) with numerous contributions by others.

-01 Description of the TRNSPLNT mail list and bit.listserv.transplant
-02 Transplant Chat Groups
The Lung Transplantation Page ...
-03 Transplant Caregivers Support Group
From Evelyn Heering (ev48@aol.com):...
-04 Australian Transplant and Dialysis discussion list
RALPH NEWMAN :...
-05 Second Wind discussion list
(see Second Wind National Lung Transplant Patient's Association web ...
-06 Kidney/Pancreas Transplant Support Group
Since dealing with the long term chronic condition and ...
-07 HTX, Heart and Lung Transplant Support Group
Chris Molnar (StephenKyl@aol.com)...
-08 LiverSupport-L
from Ron Koestler [koestler@ix.netcom.com]...
-09 The Organ Transplant Support Group Chat
http://www.jensoft-cs.com/icqlist....
-10 Selected organ and tissue transplant info #1
There is no attempt here to make a comprehensive list of web ...
-11 Selected organ and tissue transplant info #2
The Delaware Transplant Program (DVTP)...
-12 Selected organ and tissue transplant info #3
HCFA, The MEDICARE and MEDICAID ...
-13 Selected organ and tissue transplant info #4
Life Connections of ...
-14 Selected organ and tissue transplant info #5
New England Organ ...
-15 Selected organ and tissue transplant info #6
Organ Transplant Patient Home ...
-16 Selected organ and tissue transplant info #7
Renalnet Home ...
-17 Selected organ and tissue transplant info #8
Transplant Awareness Inc....
-18 Selected organ and tissue transplant info #9
-19 Selected organ and tissue transplant info #10
TRIO (Transplant Recipients International Organization, Inc.)...
-20 Organ donation and transplantation, frequently asked questions
-21 Organ Donation And Transplantation Fact Sheet
The donation of organs is a unique opportunity to save lives. It ...
-22 Questions frequently asked by transplant patients:
(see also UNOS pamphlets in Yale biomed gopher, information in TransWeb,...
-23 What's my position on the list?
Candidates and donors are matched by data, not rank. The only ...
-24 Where is the best transplant center?
We (UNOS) maintain(s) data on center-specific graft and ...
-25 The Organ Donor Shortage
-26 National Donor Sabbath web site
This site contains a wealth of information regarding the positions ...
-27 Transplant And Organ Donation Myths
-28 The "rising from brain death" myth
-29 The black market myth:
-30 The Latin American baby snatching myth
-31 The racism myth:
-32 The preferential treatment on the US waiting list myth
-33 Organ donor awareness postage stamp campaign and other awareness materials
After nearly two decades of work by many individuals the Postal Service ...
-34 Organ Donor Awareness Apparel
Hats, shirts, and jackets with donation ...
-35 Things Your Doctor Didn'T Tell You
(contributed by Alex Bost alex@unx.sas.com)...
-36 June `95 drinking water advisory
from Ken Lifton :...
-37 Drug interactions
Subject: Re: ...
-38 Packing for hospital
(compiled by Luis Enrique Acero from ...
-39 Sources of information on organ and tissue donation, transplantation, and transplant centers. Patient support groups, services, and media. List of US lung transplant center waiting times
National Donor Sabbath web ...
-40 UNOS
(See also Part 1, section II for UNOS WWW page.)...
-41 Coalition on Donation
The Coalition on Donation is a nonprofit alliance of ...
-42 The Partnership for Organ Donation, Inc.
http://www.med.umich.edu:80/trans/transweb/...
-43 The Wendy Marx Foundation for Organ Donor Awareness
Dedicated to educating people about organ donor awareness. It ...
-44 Support groups
(see Part 3 for organizations offering financial assistance)...
-45 Children's Liver Association for Support Services (C.L.A.S.S.)
26444 Emerald Dove ...
-46 Diamond State Organ Donor Association
PO Box 471 800-464-...
-47 Donor Network of Arizona
From Dale Ester :...
-48 Liasons for Life Support Group
800-543-
-49 Second Chance Transplant Support Group
1609 WINTERGREEN ...
-50 Special News
Ron Sewill ...
-51 TRIO
http://www.med.umich.edu/trans/transweb/support/trio_main....
-52 Local transplant centers and OPOs
Local Organ Procurement Organizations (OPOs) often have education ...
-53 Books, Magazines, and Videos
(see also Wendy Marx Foundation above)...
-54 Transplant Video Journal
A half-hour video newsmagazine covering transplantation topics ...
-55 List of waiting times at some US lung transplant centers
Waiting time estimates were given by a center employee on April 1995....
-56 Living-Related Liver Transplant Programs in the US
from Lisa Carroccio, Chairwoman & CEO Biliary Atresia & Liver Transplant ...
-57 Non-US professional organizations and patient support groups
If anyone would care to contribute information on transplant ...
-58 Dialysis and transplant support groups:
The list below was compiled by Gerald ...
-59 Transplant fundraising
(see also the National Transplant Patient Resources Directory, part 3 ...
-60 Agencies Provide Fundraising Help
-61 Live kidney donor information
-62 Renal transplant specific sources and information
(see also the National Transplant Patient Resources Directory, part 3 ...
-63 The Diabetes Transplant Exchange
-64 National Kidney Foundation
30 E. 33rd Street, 11th ...
-65 Periodicals (Magazines) Available to Renal Patients:
-66 Do I need a Hepatitis B Vaccine?
Hepatitis B is a serious viral disease that attacks the liver. It ...
-67 Should I get a Flu Shot?
Yearly immunization for the influenza virus is recommended for ...
-68 Become a bone marrow donor - (800)MARROW-2
Information about how to be registered in the database for tissue ...
-69 Bone Marrow Resources
-70 Transplant Financial And Support Resources
The following is a list of financial and support resources. Section I ...
-71 National Resources Coverage for Health Care/Medications
-72 High Risk Insurance Pools
A directory of high-risk insurance policies available state-by-state ...
-73 Medicaid Coverages
Medicaid often provides coverage for outpatient medications. There ...
-74 Medicare
Medicare currently covers heart, liver and kidney transplants in ...
-75 Medicare Supplemental Insurance (Medigap Policy)
Medicare does not always cover 100% of all medical needs. That is ...
-76 State Kidney Programs
Only Kidney Transplant or Renal ...
-77 State Pharmaceutical Assistance Programs
The following states have programs with specific financial ...
-78 National Resources Educational Information, Financial Grants, Fundraising Information, Medication Grants
-79 American Association Of Kidney Patients (E)
National
-80 AMERICAN CANCER SOCIETY (E, M)
1599 Clifton ...
-81 AMERICAN DIABETES ASSOCIATION (E)
1660 Duke
-82 AMERICAN HEART ASSOCIATION (E)
7272 Greenville ...
-83 AMERICAN KIDNEY FUND (ELF)
6110 Executive Boulevard, Suite ...
-84 AMERICAN LIVER FOUNDATION (E, FR)
1425 Pompton ...
-85 AMERICAN LUNG ASSOCIATION (E)
1740
-86 AMERICAN ORGAN TRANSPLANT ASSOCIATION (AOTA) (E, FR)
3335 Cartwright Rd....
-87 CHILDREN'S ORGAN TRANSPLANT ASSOCIATION (COTA) (FR)
2501 COTA
-88 JUVENILE DIABETES FOUNDATION INTERNATIONAL (E)
432 Park Avenue ...
-89 THE NATIONAL HEART ASSIST AND TRANSPLANT FUND (E,F,FR)
519 West Lancaster Avenue, PRO. Box ...
-90 NATIONAL KIDNEY FOUNDATION (E)
30 E. 33rd Street, 11th ...
-91 NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD),INC. (E,M)
P. O. Box
-92 ORGAN TRANSPLANT FUND, INC. (FR, M)
National
-93 PHARMACEUTICAL MANUFACTURERS ASSOCIATION (M)
1100 Fifteenth Street ...
-94 THE TRANSPLANT FOUNDATION (E, M)
8002 Discovery Drive, Suite ...
-95 TRIO Transplant Recipients International Organization
http://www.trioweb....
-96 Other companies offering pharmaceutical delivery services:
American Preferred ...
-97 Additional Drug Payment Assistance
-98 Financial and travel assistance
-99 Medicare Drug Cost Coverage And Information
(provided by Dale Ester )...
-100 Medicare information:
From Dale Ester :...
-101 Additional government programs of interest
From Alex Bost :...
-102 Patient specific education and support ----------------------------------------- (See also Part 1, section VII; in Yale biomed gopher [described in Part 1, section II] UNOS Brochures/1. Questions a patient should ask 2. What every patient needs to know)
-103 Transplant patient exercise video
STADTLANDER'S has produced an exercise video for transplant ...
-104 Medic Alert bracelet
From Jeff Punch ...
-105 Transplant Awareness Inc.
(from Douglas Sur - doug.sur@bigfoot.com)...
-106 AMERICAN SHARE FOUNDATION
from John S. Abbott (1/6/95):...
-107 Children's Liver Association for Support Services
Dedicated to addressing the emotional, educational and ...
-108 The Transplant Educational Foundation
PO Box
-109 UNOS pamphlets
Text versions of the brochures Questions a patient should ask, ...
-110 TransWeb at University of Michigan
The items below are copied from TransWeb at University of Michigan,...
-111 What do I do if I want to donate?
-112 Top 10 Misconceptions About Organ Donation
-113 Who is responsible for paying for the care of a donor?
Question:
-114 Life expectancy of liver transplant patients, and can they be weaned off meds?
Question:
-115 Spouses as kidney donors
Question:
-116 How many transplant survivors are there in the US?
Question:
-117 How long can donor organs last on life support?
Question:
-118 Are organs allocated based on race?
Question:
-119 What is the life expectancy of kidney/pancreas grafts?
Question:
-120 If someone abuses their body, will they still be given a transplant?
Question:
-121 What is the life expectancy of an LR kidney transplant?
Question:
-122 What are the risks & benefits of kidney-pancreas transplants?
Question:
-123 When can organs be "harvested"?
Question:
-124 Can I sell my kidney?
Question:
-125 Can well-connected people like Mickey Mantle get transplants faster?
Question:
-126 What's the prognosis & treatment of Hep C in liver transplant patients?
Question:
-127 My good friend just received a heart-lung transplant. How long should I worry about the chance of rejection? He got his transplant 2 days ago.
Answer:
-128 What is the rate of heart tranplant success? What is the life expectancy of a successful heart transplant patient? What is the length of time and means of preservation of a harvested heart?
Answer:
-129 Can you give me a range of cost for a liver transplant? (in the U.S.)
Answer:
-130 What is brain death?
Answer:
-131 Frequently Asked Questions
Important!
-132 Myth about Organ Donors Not Receiving Good Medical Care
-133 Looking for a Transplant Center
-134 Does my religion approve of organ donation?
See also:
-135 A More Technical Explanation of ABO Organ Matching
-136 What is chronic rejection? What is being done about it?
-137 Organizations Promoting Donation
(See also Part 2)...
-138 Local Coalitions on Donation
(listed in alphbetical order by state)...
-139 The Wendy Marx Foundation









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