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This article is from the Inflammatory Bowel Disease FAQ, by Susan Blank smb@panix.com with numerous contributions by others.

1.1.2 What organizations are there for people using tube or intravenous feeding?

For people living with home parenteral and/or enteral nutrition (tube or
intravenous feeding such as TPN) there's the Oley Foundation,
which publishs a monthly (or so) newsletter, sponsors seminars,
and has a lending library of videotapes, all aimed at educating &
empowering the HomePEN consumer (they refuse the word "patient"). Although
many conditions/diseases are represented, a significant percentage of their
members are people with IBD (mainly Crohn's). All that's needed to become
a member is to _be_ on Par/Enteral feeding - there are no dues or
membership fees, although they do gently request donations (much of their
money comes from corporate grants/gifts from various home care companies).
The Oley Foundation can be reached at 1-800-776-OLEY, address 214 HUN
Memorial, A-23 Albany Medical Center, Albany, New York 12208.
The newsletter is called _LifelineLetter_ and is sent FREE of
charge to those on long term home parenteral or enteral nutrition.
Website: web.wizvax.net/oleyfdn

 

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health, Inflammatory Bowel Disease, IBD, IBS, crohns, colitis