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This article is from the Inflammatory Bowel Disease FAQ, by Susan Blank smb@panix.com with numerous contributions by others.

1.0.1 What IBD support organizations exist in the US (Inflammatory Bowel Disease)?

If you live in the U.S., start by contacting CCFA- the Crohn's and Colitis
Foundation of America, 386 Park Avenue South, 17th Floor, New York, NY
10016-8804, at 1-800-932-2423 or 212-685-3440, fax 212-779-4098.
They have books to buy (see below), newsletters to subscribe to, support
groups to join in many areas, information about doctors to see, and they
are major fundraisers/supporters of research into the causes of IBD and
hopefully, eventually, a cure.
Website: www.ccfa.org

Another U.S. organization worth contacting is the Intestinal Disease
Foundation, 1323 Forbes Avenue - Suite 200, Pittsburgh, PA 15219,
1-412-261-5888. This is a very patient-friendly, hard-working, and
savvy non-profit organization that provides support and
education to individuals with any intestinal disease.
They serve many patients with Crohn's and colitis, and also
fill specialty niches which CCFA does not, i.e. also helping those with
irritable bowel, diverticular disease, short-gut syndrome, and "gas".
The Foundation's executive director is Carolyn Russ, who coordinates a large
cadre of volunteers. The Foundation also puts out a quarterly
newsletter which is quite informative.

The National Digestive Diseases Information Clearinghouse, 2 Information
Way, Bethesda, MD 20892, 301-654-3810, is a government-funded agency
that provides information to patients, families, and medical professionals.
They answer questions, coordinate informational resources on digestive
diseases, and distribute publications about many conditions.
Website: www.niddk.nih.gov

The Pediatric Crohn's and Colitis Association, P.O. Box 18,
Newton, MA 02168-0002, 617-290-0902, supports research and
addresses medical, nutritional, psychological, and social factors relating
to pediatric and adolescent Crohn's disease and ulcerative colitis.
They can also give you the names of specialists in your area.

Reach Out for Youth With Ileitis and Colitis, 15 Chemung Pl.
Jericho, NY 11753, 516-822-8010, Fax : 516-822-8885., provides
nationwide information and telephone support for social as well as
medical issues. In the New York region, they organize educational seminars
and individual and group support for patients and their families. If you call
you can ask for a free sample of their quarterly newsletter Inner Circle.

The Gastro-Intestinal Research Foundation of Chicago (GIRF) provides
funds to support researchers at Uchicago's Gastroenterology Division.
For more information about GIRF, contact: The Gastro-Intestinal
Research Foundation, 70 East Lake Street, Suite 1015,
Chicago, Illinois 60601-5907, tel (312) 332-1350.
Website: homepage.interaccess.com/~ring/girf

 

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• next: 1.0.2 What IBD support organizations exist in Canada?

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health, Inflammatory Bowel Disease, IBD, IBS, crohns, colitis